CRPS fighter-Heather Update 10/5

Heather Lynn- Update 10/5/13

Hey! Everyone!

I realized I haven’t provided an update recently, and a lot has gone on since 7/1/13 (my last update)…

Click here for that update (it provides a lot of info, involving me):

*Those who are wondering how this all started*,click here:
^^ That post provides my awesome story, on how I developed CRPS.

I have some good news and bad news.
The good news, is that I found an AMAZING doctor, and I highly suggest anyone with CRPS, to come and see him!

One thing he is known for, is how well he does ultrasounds, and how he uses them. He’s also worked with MANY patients who have CRPS. It was so refreshing to see a doctor who actually knew what CRPS was, how it effects all aspects of your body. He was able to tell me things about CRPS that I didn’t even know (which is rare,as many of your with CRPS know..)
He also has a Co worker who does ketamine infusions,and can give them to me regularly, not every 5 months. So, all of that is the good news.

But, the bad news is what the doctor found, while doing the ultrasound.
The ultrasound reads the activity inside your nerves. If they’re aggravated, the area on the screen turns red,where it’s the worst.
He checked 1 major nerve that goes from your mid thigh, down to the inside of your ankle. The whole nerve, from thigh to foot, was red..

Apparently, my nerves and my blood vessels are “at war”. My nerves are pissed at my blood vessels,and my blood vessels are pissed at my nerves…
He checked the 3 major nerves that connect to my feet,and they were all the same. They are all damaged. 😦
All of this is what is ultimately making my CRPS worse, and the treatments ineffective.
I mentioned in my last update that they found bone marrow edema in 2 of the bones I broke 18 months ago…
Well, it’s those two things that I mentioned above, that’s causing the bone marrow edema.
It’s a horrible chain.. Pissed off nerves/Blood vessels~~> pisses of CRPS~~> causes Bone Marrow edema.
So, my theory about healing the bone marrow edema, is out the window.

The goal now, is to do everything they can, to help and relieve some of the pain. Enough to where I can comfortably start using my foot/leg again… Gain strength and get the muscles working again.etc.
So, we are going to continue the ketamine infusions (I’m getting 2 done in a 3-4 month span) then after that, the Calmare therapy.

Next Tuesday I’m supposed to get a
femoral sympathetic nerve block, and I’m not thrilled about that at all. But we shall see!
I just want my life back 😦

I will make sure to post more updates on here!
Make sure you check out my other blog!!

Thank you all!
Heather Lynn

Ps: the doctor that I was talking about is in Silver Spring, MD & Bethesda,MD. If you’re interested in his information, leave a comment with your email address, and I’ll send it too you! 😉


4 thoughts on “CRPS fighter-Heather Update 10/5

  1. Mary says:

    Hi Heather…..Just want you to know I am praying for you every night that this new doctor will be able to help to make your days better by alleviating some of your pain. And than that you will be able to move on to the next phase of treatment in NJ. Don’t give up the fight little lady, you are tough and if people continue to pray for you, I totally believe there is power in prayer <3.


  2. ericdelta7 says:

    OH WOW !! Heather You are in my thoughts and prayers !! I know you will kick CRPS’s ASS 🙂 If there is anything I can do please let me know !!! You’re such an inspiration to me and how no matter what you keep fighting !! Stay strong sunshine 🙂 ❤


  3. jonestra says:

    heather I was wondering about your shirt about Keep calm and also about any of your designs as well who is your doctor who is going to do your ketamine

    God Bless You, Tracy with him we can put out the fire within

    >________________________________ > From: A CRPS angels world >To: >Sent: Saturday, October 5, 2013 8:31 PM >Subject: [New post] CRPS fighter-Heather Update 10/5 > > >urockyourcause posted: “Heather Lynn- Update 10/5/13 Hey! Everyone! I realized I haven’t provided an update recently, and a lot has gone on since 7/1/13(my last update)… I have some good news and bad news. The good news, is that I found an AMAZING doctor, and I highly su” >


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