Category: CRPS Tool box

Operation Wear Orange!

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Hey everyone!

– Would you like to put a smile on millions of faces?
– Would you like to show your support to every CRPS fighter?
– Possibly change lives in a positive way?
*(By doing something so simple, and possibly even fun!? Without spending a dime!)*

~Keep reading, and you’ll see what “Operation Wear Orange!” Is all about! ~

For those who don’t know, November is CRPS awareness month! (Yep! We have one of those! But, we need it to start spreading more awareness)
There is an amazing organization called Power of Pain, http://www.powerofpain.org, they call next month “Nervember”, which is catchy and appropriate!
You should definitely go check out their website! They provide information about many forms of Chronic pain!

Through out the whole month, I am going to try my hardest to post something new everyday, whether it’s information, an update, some inspiration, who knows- maybe just a goofy picture of my “catdog” for some giggles! 🙂

Another important thing about next month (besides my Birthday ::cough cough:: the 14th ::cough cough::)
Is CRPS awareness day! Which is on November 5!

It would mean the world to me if you all will “celebrate” this day, and show your support, by wearing orange! It could be an orange shirt, tie, socks, pants, jewelry,etc!


(This was me last year)

If your having a conversation with co workers, friends, family, or even strangers… Try to spread awareness about CRPS!

————

This is where “Operation Wear Orange!” Comes into play!

-For those who rock orange on November 5th, please take a photo and either:
Tweet it, FB it, or Instagram it (and tag me @aBlondeBabe) with the hash tag #WearOrange4CRPS!

(If you don’t have any of the above, feel free to email me @ Hope4Yourcause@gmail.com!)

-I will not only make a huge collage (or hopefully collages), that you will be apart of, and will be posted on my blog!

**IF WE CAN GET OVER 100 PEOPLE TO PARTICIPATE,THEN:**
I will pick 2-3 winners, who will win a prize! 😉

Ultimately, you will be showing your support to millions of people who are fighting this debilitating condition 24/7. Words can not describe how much that would mean.

**If there are any companies that would like to donate items/offer their services, for the challenge winners, please email me at:
Hope4Yourcause@gmail.com!!**
Your business will be promoted through out the month of November (CRPS awareness month) on this site, my personal twitter, letsrocktheribbons.com, LRTR’s twitter account ( @urockyourcause), blogsbyheather.tumblr.com, http://www.facebook.com/HLynnMD and my personal FB account.
*During and After the month of November, your logo(or a photo of your choice, that represents your business) will go on the side of this site with the other “Supporters”. Your photo/logo will be directly linked to your website!* 🙂

*I will post a reminder on November 1st*

Until then, please share this post through out social media, to your loved ones, and mark your calendars! “Operation Wear Orange!” #WearOrange4CRPS!


(Be sure to check out my other website which is dedicated to spreading awareness about numerous causes! http://www.letsrocktheribbons.info (-: Where you rock your cause!)

**Let’s educate the world about CRPS, and help us put out the fire**

Again, please share this post all over!
-How awesome would it be if 100 people participated in “Operation Wear Orange!”??
500 people?!
1,000 people!!?
It’s possible… But not without you!

Thank you so much
Love,
Heather Lynn

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CRPS tool box: Words of wisdom

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Here are some quotes that I found, In hopes that it may help those of you going through some hard times.

And to those of you who are in the large family of CRPS/RSD fighters…

Never give up hope ❤

There are so many others that I just love!

Many of us have a special quote or saying, that helps us get by…. Everyday.

I’d be honored if you’d share your favorite quote… Or some words of wisdom!
Please leave a comment below, with your words of encouragement!
I’m hoping there will be enough, where I can share them in a separate post (with credit given)! Unless you’d rather me not share them in a post, just mention that in the comment, and I won’t.

Thank you for coming to http://www.hopeforyourcause.org!

Remember.. “Always give hope the time to float…. Because it will!”

Love,
Heather Lynn

Ps: make sure you go to my other blog and show some love! ❤ http://www.heatherstreasure.com 🙂

CRPS Tool box: StudioSox

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Hey Ladies!!

There is a special product that I’d like to share with you today.
I contacted a company in California after coming across their website a month ago.

As I’ve mentioned in my blog, I was diagnosed with Complex regional pain syndrome (CRPS) in March 2012. It’s a syndrome that affects the sympathetic nervous system. Mine developed after breaking my foot. For more information, please go to my other blog, http://www.hopeforyourcause.org (which shares how it’s been, living with this debilitating condition).

Anyhoot! As of now, there is only one pair of shoes that I can wear, without the pain getting so bad, I black out. Skechers “GoWalk’s” are the shoes that I am talking about.
– One downside to these shoes, is that they aren’t very stylish(Or at least not my style).And you can’t really wear socks with them, unless you’re wearing pants to cover top part of the shoes. With my CRPS, I have to wear socks with any type of shoes.
So, I’ve been in a dilemma for a while now!

This is why I am extremely happy I came across http://www.StudioSox.com!

As it states on StudioSox’s website:
“STUDIOSOX® is the preferred footwear of professional and devoted movement enthusiasts: Pilates, Yoga, Dance, Gyrotonics and Martial Arts.
STUDIOSOX® are available in three styles: Tabi, Open and Closed Toes with a non slip, no skid sticky tread for performance, hygiene and style.”

Now, I am not currently able to do yoga, Pilates,Dance,etc. BUT! I can 100% see how women LOVE wearing these “Sox”, while they are working out!

I think it’s important to share with you, how CRPS affects your skin, as well as body temp.
before I go on…

After reading the photo above, you may have a better idea of why a pair of socks that are very thin, light weight, AND have tread on the bottom(so I don’t slip and fall) are PERFECT for me! I can easily say that “StudioSox” are a new favorite product of mine! And definitely a must have, for those of you who have CRPS/RSD in your lower limbs!

For those of you who are into Yoga, Pilates, Martial Arts,etc… I HIGHLY recommend you try these socks! They have 3 different styles:

And each serve their own purpose! Go ahead to their website http://www.studiosox.com and click on the different styles, you’ll see the different descriptions/purposes right there! 🙂

You should also check out their Facebook page! By clicking here:
https://facebook.com/profile.php?id=206127326077542&__user=621740709

Overall, “StudioSox” will be something that I recommend to anyone and everyone! Well… When it comes to Ladies! Hehe!

I want to personally thank Candace Fair, for sending me a couple pair of these awesome “sox”. They have truly made a difference with the shoes that I wear! I have also noticed that they don’t add additional heat to my feet, as a CRPS flare approaches. Thank you so much!

Thank you for stopping by! Come back very very soon! 🙂
Love,
Heather Lynn

Disclaimer: This is not a paid/sponsored post. I did receive two pair of Studio Sox, after contacting the owner and explaining my health condition. StudioSox did NOT ask/require me to write this recommendation. I wrote this post because I feel this product should be shared, due to its great quality. It is also important to me to share, in hopes that it may help others with the same condition as me.*Results may vary!*
Everyone is different, regardless of the reason for using the product.

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CRPS tool box: Dry skin and Burt’s bees!

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Hey everyone!

I wanted to share a product with you, for those of you with CRPS/RSD, or any other type of condition that limits your ability to use products on your skin.

With CRPS/RSD, the limb(s) that are affected, tend to get extremely dry. If your like me, using any type of lotion is a NO-NO! I’m either terrified of the lotion causing a flare, OR it hurts really bad to apply/rub it in.

One day, my feet (which both have CRPS) were extremely dry…To the point that my skin was starting to crack. I needed to figure something out! Or else my CRPS would just feel even worse (if that’s even possible).

My father, who absolutely LOVES Burt’s Bees, brought me a bottle of lotion to try. I was very hesitant at first, but realized that I needed to take care of this! So, I started to apply the lotion very gently. I was able to apply the lotion on both feet! Not only did it completely take care of the severe dry skin at the moment, but it wasn’t painful to apply!

I will say, it wasn’t 100% pain-free, but HELLO! with CRPS, touching the area at all hurts really bad. It wasn’t the lotion that hurt, it was just the fact that I was touching my feet in general.

So…What is this magical product?!

It’s Burt’s Bees ” Naturally Nourishing Milk and Honey body lotion”!

This is what the description on Burt’s Bees website, says about the product!

“Soothing milk meets honey in this nourishing yet lightweight natural moisturizing lotion. Honey acts as a natural humectant, while aloe and sunflower oil soothe and moisturize skin.”

It makes sense to me… It’s all natural, and does not have any strong fragrances or any crazy stuff like that.

Those of you with CRPS/RSD, there is still hope. Never forget that. There are new treatments, products, technology, etc. coming out everyday that is available to make this horrible condition somewhat bearable.

Never ever give up hope.

The only bad news is, at least where I live… this particular lotion isn’t available. I don’t know if it’s because it sells out before I get to it, or if it’s because they don’t supply it. THIS COULD EASILY JUST BE WHERE I LIVE!

Either way, you can find this magical lotion here: Milk and Honey Body Lotion

Those of you who have CRPS/RSD, are there any particular products that you use, for anything (not just dry skin), that you swear by? Products that help your comfort/pain?

If you do, PLEASE share them! By leaving a comment on this post! Share and Make aware!

Thank you all for reading this,and I really hope this helps some of you who don’t know what to do about your dry skin/don’t know what kind of lotion to use.

It’s the small things in life that make a huge difference.<3

I hope you all have a pain-free/low pain day!

Love, Heather Lynn

Disclaimer: This is not a paid/sponsored post. I did NOT receive any compensation for writing this post, not any money or free products. I wrote this post, to help others with the same condition as me.

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CRPS tool box: Helpful Tips!

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Hey!

So…I was searching the Internet to get some information on a doctor that I am supposed to see at the end of the month,and I found an awesome site!

*(Side note: whether you have a health condition or not,ALWAYS google a new doctor you are going to go see! 9 times out of 10, there will be reviews from their patients on there. ESPECIALLY if they have bad reviews! Doing this may save you a trip to a doctor with horrible bed side manner,or w/e reason they suck!)*

With CRPS/RSD, we have specific things that trigger a “flare up”. For me,I know exactly what my triggers are,at least for now. (Things change everyday)
My #1 trigger for a flare, is weather! Ugh! If the temperature changes too much,too fast. When it rains, snows, if it’s foggy,humid…etc. My feet automatically flare up,then my arms shortly follow.

This isn’t just with CRPS/RSD, Arthritis, Fibro, etc… So this tool would work for you too!

“The Aches and Pains weather checker”

Here is the link!
http://www.weather.com/activities/health/achesandpains/

See where it says “**Pressure**?”
– That’s the first thing I look at. Notice how it says 30.18 and *falling*?
~ Well,for me, that means “Heather..if you’re not feeling it yet, expect to start feeling a flare VERY shortly!”
Grrr! But! I rather know why Im flaring.

Another recommendation I have for those of you who have chronic pain, Migraines, etc. Download the **My pain Diary** app, on your iPhone (and possibly an android- I am not sure if the android version is available yet).

This app is beyond amazing! I could go on forever about all the things this app can do,and benefit you. I highly suggest you either check your App Store and/or google **My pain diary** and you can see the awesome features available with this app!

I hope everyone has a great week!
Thank you!
Heather Lynn